Autism in WNC
° Haywood – 20
° Jackson – 22
° Macon – 9
° Swain – 5
According to 2002 statistics from The Autism Society
For more information, visit www.fullspectrumfarms.org
Jaime Alvarez was 4 years old when he was diagnosed with autism.
A complex developmental disability, autism is the result of a neurological
disorder that affects an individuals ability to effectively
communicate and socially interact.
Characteristics of autism often include an affinity for routine
and resistance to change, repetitive speech, desire to be alone,
difficulty touching others or being touched, over-sensitivity or
under-sensitivity to pain, little fear of danger and weak motor
skills. Such characteristics manifest in varying degrees of severity.
Jaime was so affectionate, so warm, so outgoing when he was
little, said his mother Jean, a part-time special education
teacher in Asheville.
As Jaime grew older, his parents noticed that his speech was delayed
and his play repetitive. Doctors soon diagnosed the disorder and
began treatment, and Jean spent much of her time essentially providing
24-hour care.
When Jaime was 12 the family moved from their home in Maryland to
Waynesville. At age 14, unable to cope with the change and perhaps
affected by the transitions of puberty, Jaime began refusing to
go to school.
His refusal, paired with his tendency to experience violent, emotional
outbursts, put the family at a loss for what to do. Unable to get
through to her autistic teen and desperate for intervention, Jean
took Jaime to a two-year program designed for autistic children
with behavior problems.
It was there that Jean learned about the Carolina Living and Learning
Center, a residential and vocational training program for adults
with autism located on a farm in rural Pittsboro.
The center, founded in 1990 and developed by Division Treatment
and Education of Autistic and related Communication handicapped
Children (TEACCH), provides residents with vocational training in
farming and landscaping. Residents grow and sell organic vegetables,
bake bread, clear trails and do landscaping jobs, all of which they
are paid for.
People recognized a need for a different kind of service for
adults with autism than what was currently available, said
Carolina Living and Learning Center Program Coordinator Tom Wiebe,
of the centers creation.
The farm concept stemmed from other programs in Europe and one in
Ohio, Bittersweet Farms, which effectively mixed gardening and therapy.
But for autistics in particular, the benefit comes from farmings
sense of tangible results and routine maintenance.
The nice thing about the farm setting first of all is the
work provides meaningful work, Wiebe said. People can
understand that what they do results in something useful.
For example, planting a blueberry bush leads to something edible
— blueberries.
The work also gets farm residents outside, engaging in physical
activity, which can help alleviate the fact that autistics often
can be addicted to certain foods or are geared toward sedentary
lifestyles.
Traditionally, work for people with autism involves being indoors,
perhaps in a crowded, noisy environment such as an assembly line,
said Christine Richardson, Community Service and Summer Program
Coordinator for the Asheville Autism Society Branch. That environment
can be unpleasant for autistics so outdoor work like farm work provides
a viable, peaceful alternative. Additionally, farm work allows for
a variety of jobs on different skill levels providing opportunities
for low-functioning to high-functioning residents.
I was just amazed at how much sense a farm situation makes
for adults, Jean said.
The residential aspect of the farm also helps ease the transition
of home to work, since work is essentially at home, Richardson said.
Autistics can have a difficult time dealing with changes that may
seem minor to the rest of the population, but even getting on a
bus and going somewhere else to work can be disruptive and confusing.
With that information in mind and a seed of thought planted, Jean
returned to Western North Carolina and began discussing taking on
a similar project with other members of the autistic service community.
The land, with its history of farming and predilection for organics,
was prime for an autism treatment farm. In addition, there were
few treatment options for autistic adults who lived in the area
west of Asheville.
By doing the farm, its not in reaction or dissatisfaction
to current offerings, Jean said, citing Haywood Vocational
Opportunities as one of several positive programs geared toward
serving autistics in WNC.
Jean formed a 14-member board of directors including special education
teachers, workers with the Autism Society, parents of autistic children,
fund-raising specialists and grant writers. Together the board drew
up a wish list including vehicles, building materials, furniture,
appliances, a greenhouse and, most importantly, land.
The group needs 50 to 100 acres of land — either donated or
sold at a cut rate — in order to make the farm a reality.
Until that land is found, Full Spectrum Farms Inc. is little more
than a name.
In the meantime, Jean is forging ahead with plans to become licensed
by the state of North Carolina and to open an autistic adult day
program at St. Cyprians Church in Franklin. The program will focus
on gardening and environmental activities similar to those Jean
hopes to implement on the residential farm. The program is expected
to be open within three to four months. Residents of Macon and all
the surrounding counties are eligible to participate.
The process will be a learning experience, Jean said.
Were going to start very small.
Full Spectrum Farms has estimated a $130,000 operating budget for
one year of the day program, a figure theyre slowly working
toward.
We still have a long way to go, Jean said.