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3/10/04
Teaching
independence
Parents spend years helping autistic child learn basic skills
By
Sarah Kucharski
On the way to the last day of after-school basketball, Zak Bazzel
is jamming out. His hulking body vigorously rocks front to back,
hands reaching double body width apart before smacking back together
in rhythm to the South African beats of Juluka on the radio.
Once at the gym he strips off his T-shirt courtside, switching into
a new light gray shirt like his teammates are wearing and immediately
reaches to rip out the neck tag.
Zak pulls the tags out of any shirt he can get his hands on, something
that has proven problematic as his parents are trying to teach him
how to do laundry. Consequently the entire Bazzel household is tagless.
Some shirts havent held up to the de-tagging all that well,
ripping at the seams or giving way to a hole.
The Bazzels are trying to break the habit. That, or theyll
just keep buying Hanes and Gap, which have caught on to the whole
anti-tag movement and just stamp their sizes where the tag would
have gone.
Out on the basketball court, Zak attempts a few shots. Looking at
the coach rather than the basket he misses. At the next skills test
station, he leans against the wall, eyes slightly squinted, hands
clapping widely and makes loud, unintelligible noises at no one
in particular until its his turn. He dribbles down the line
and bounce passes the ball to a waiting coach.
And the end of the practice, the coaches collect the team and hand
out superlatives. When they call Zaks name he doesnt
notice until a teammate taps him on the shoulder and points. He
lumbers up to accept his ribbon; handshakes are given all around.
Back at home, Zaks mom, Joan, hangs the ribbon on the side
of the refrigerator along side the others. Zak goes to change and
the same loud, unintelligible sounds echo down the hallway.
Diagnosed with moderate to severe autism when he was 4, Zak, now
17, can barely read, write or speak. He signs his name in inch and
a half letters complete with a smiley face. His drawings, often
done in crayon, feature happy bugs — fat bees, red and yellow
butterflies, big-footed ladybugs.
His words are forced, as though his mind must struggle to assemble
the syllables. The memorized sentences, saying hello, thank you
and so on, come easier, said dutifully, purposefully.
Diagnosis, however, wasnt easy. Until he was 18 months old,
Zak exhibited fairly normal developmental behavior. He was learning
words, playing, eating the occasional green bean from the garden.
But at 18 months those behaviors stopped.
Although Zak was Joans first child, she knew that something
wasnt right.
When I noticed Zak trying to participate it was obvious that
he was not developing normally, Joan said.
In an effort to help facilitate social interaction, Zak was placed
in day care two days a week. Unlike most toddlers who cry when their
parents leave, Zak paid no heed. Eventually a daycare worker gave
Joan a Readers Digest article about autism, and the information
contained therein rang a few bells.
Joan took Zak to a doctor, who recommended seeing a specialist,
who recommended another specialist. The efforts appeared in vain.
They said, Hes a boy, hes slow, dont
worry about it, Joan said.
When Zak was 4 the family moved to Franklin, where they met a speech
therapist who took time to observe Zak. After watching him take
his clothes off or sit in the sandbox and sift sand for hours, the
therapist scheduled an appointment with the Developmental Evaluation
Center at Western Carolina University.
Workers at the DEC took their turn observing Zak and a week later
called to recommend an organization based at the University of North
Carolina at Chapel Hill called Treatment and Education of Autistic
and related Communication handicapped Children (TEACCH).
That was the beginning of a long journey, Joan said.
For the first three years of school — one year of kindergarten
and two years of first grade — Zak had a one-on-one facilitator
who encouraged him to become more sociable, outgoing, flexible to
changing situations.
In second grade, Zak was transferred to another school and placed
in a special needs classroom.
While the grades passed, the life skills were slow to come. It takes
abnormally long to teach Zak to do things on his own. It wasnt
until May 30, 2001, that Zak finally learned how to tie his shoes.
He was 13.
It really makes you aware of your own limitations, Joan
said.
These days Joan and her husband, Mike, are still working on teaching
Zak the skills he will need to live a more independent life. Each
task has its pitfalls however. Like pulling the tags out of all
the shirts in the laundry, Zak can cook, but he cannot turn on the
stove. Zak will never drive a car and hell probably never
hold down a 9-to-5 job.
But that doesnt mean that Zak cannot at least work towards
living on his own. Although he can stay in school at Franklin High
School until hes 21, Joan and Mike have decided to move Zak
to a group home for autistics in Asheville. The move most likely
will not occur until Zak is 20, but in the meantime, Joan has started
working on developing a support system to help ensure that Zak is
never lonely or in need.
Bazzelbuddies is designed to locate people who are willing to drop
by, say hello, maybe take Zak out for a Coke.
The idea for Bazzelbuddies stemmed from the mother and sons
Bazzelbugs, little wire and bead creatures bedazzled with a pair
of Joans handmade earrings. Zak helps create the bugs by collecting
river rocks and coloring them. The bugs are then mounted on a pair
of the rocks and sold for $12 at Twigs & Leaves Craft Gallery and
Pottery Studio in Waynesville.
This is the kind of thing that I think people will embrace,
Joan said.
To become a Bazzelbuddy contact Bazzelbug@yahoo.com.
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